"It's the hard road with Joy, I'm afraid."
His words.
The doctor.
Two weeks post-cath. Post repair.
Definitely not what we were expecting.
The worst case scenario for Joy.
A lifelong battle against her heart disease.
Consulting with the Boston doctors. Immediately.
As my heart dropped to my stomach, was I tempted?
To ask why? Why her? Why us?
A second child? Who will die before they should and suffer in the short term?
A lesson in living and loving each and every day.
Two weeks post-cath. Post repair.
Definitely not what we were expecting.
The worst case scenario for Joy.
A lifelong battle against her heart disease.
Consulting with the Boston doctors. Immediately.
As my heart dropped to my stomach, was I tempted?
To ask why? Why her? Why us?
A second child? Who will die before they should and suffer in the short term?
A lesson in living and loving each and every day.
This is what the Lord has asked of us.
If you showed us an easier way, we would never turn back.
Because a life with Joy is the only kind of life we want to have.
Hi
ReplyDeleteI wanted to cross post this blog - you may have heard of the amazing surgeon taking care of Ivy Joy...
http://sammonsfamily7.blogspot.com/
No telling if you can find answers via this dr...but it may be worth a phone call to him...
Read her blog - a Mazing !
Best Wishes -
Carol in FL
So sorry to hear you got difficult news about your sweet daughter. I am so glad she is home with you and being loved, that is really what is the most important thing. Sending you hugs and strength, take it a moment at a time.
ReplyDeleteOh Jennifer--so not the words you were hoping to hear. Praying for you and your beautiful family. God is good!
ReplyDeletePraying for Joy and Joshua always.
ReplyDeleteWhat a sweet little girl!! Prayers for her and you... Interested in part II.
ReplyDeleteWhat a precious girl! Glad she has you guys as parents to love her along whatever road God has for her.
ReplyDeleteOh dear friend- my heart hurts for you and your sweet girl.
ReplyDeleteI do believe in miracles! And I know just the one that can make them happen!
PRAYING!!