Poor Ultraman is fading too. He did not stand up to the test of time and the rugged play of three little boys.
Happy to get some mail from China. The SWI from Hangzhou sent us a 2012 calendar. We think we found Joshua on one of the pages. He was more excited about getting mail than the actual calendar.
One of the issues that we are watching is Joshua's lack of growth and weight gain. Still no change today at his doctor's appointment. We will be sending in a 72 hour food diary to the GI doctor most likely resulting in meeting with a nutritionist. Joshua eats well especially compared to Micah and Trey so we need to find out where all those calories are going.
Today we added more doctors to the team. We continue to gather information and investigate what makes our little Asian sensation tick and how we can keep him as healthy as possible.
Our current team of doctors:
Pediatrician
Cardiologist
Gastroenterologist
Allergy/Immunologist
Allergy/Immunologist
Endocrinologist
Orthopedist
The other day, I asked Joshua if he knew he was small. I was curious if he understood that he is significantly smaller than other kids his age. He said no.We have tried to introduce "heart" language, putting words to Joshua's symptoms so he will be able to help us know when something changes. He takes it all in stride. His chest, his breathing, his jumping heart, it's all he's ever known.
Joshua brims with confidence. He accepts himself for who he is. As we meet with more and more doctors, I realize how strong our medically fragile child actually is.
Inside and out.









